‘I keep six honest service men

(they taught me all I knew);

Their names are What and Why and When

And How and Where and Who.’

Rudyard Kipling

What is he on about this time. I can hear your thoughts from here. Does that make me an X-Man? Probably. The above was a poem told to me by my martial arts instructor. He told me to always question everything. This is how we learn. This is how we evolve and adapt.

I wish I questioned everything more growing up especially with my diseases. Why am I taking this drug? Why are you taking my intestines? Where the hell do you think you are putting that god damn camera? I was told by the NHS dietitian that food did not affect Crohn’s. I will say that one more time for dramatic effect. FOOD DID NOT AFFECT CROHN’S (I am not knocking the NHS by the way, it is a fantastic institution). I was told to drink calorie shakes and take steroids. I had to sit for four hours in a hospital room with a needle in my arm for my Infliximab infusions. And this was all when I was still in my mid teens.

I’m not complaining. I’m just trying to validate my point. If I had questioned everything before hand, maybe I wouldn’t have had all of that. Maybe I wouldn’t have been operated on at all. Hindsight is a cruel mistress. But I was in denial about what a chronic disorder meant and just did as I was told because they know best right. Wrong. Its your body and only you know how you feel. Prime example. I was then on methotrexate weekly. Every week a few days after I took it, I was majorly depressed. Took me a year to make the link.

This post is mainly for those recently diagnosed with Crohn’s. Question everything and listen to yourself. What works for some people with Crohn’s may not work for you but you know best.

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