Archives for the month of: September, 2014

‘I keep six honest service men

(they taught me all I knew);

Their names are What and Why and When

And How and Where and Who.’

Rudyard Kipling

What is he on about this time. I can hear your thoughts from here. Does that make me an X-Man? Probably. The above was a poem told to me by my martial arts instructor. He told me to always question everything. This is how we learn. This is how we evolve and adapt.

I wish I questioned everything more growing up especially with my diseases. Why am I taking this drug? Why are you taking my intestines? Where the hell do you think you are putting that god damn camera? I was told by the NHS dietitian that food did not affect Crohn’s. I will say that one more time for dramatic effect. FOOD DID NOT AFFECT CROHN’S (I am not knocking the NHS by the way, it is a fantastic institution). I was told to drink calorie shakes and take steroids. I had to sit for four hours in a hospital room with a needle in my arm for my Infliximab infusions. And this was all when I was still in my mid teens.

I’m not complaining. I’m just trying to validate my point. If I had questioned everything before hand, maybe I wouldn’t have had all of that. Maybe I wouldn’t have been operated on at all. Hindsight is a cruel mistress. But I was in denial about what a chronic disorder meant and just did as I was told because they know best right. Wrong. Its your body and only you know how you feel. Prime example. I was then on methotrexate weekly. Every week a few days after I took it, I was majorly depressed. Took me a year to make the link.

This post is mainly for those recently diagnosed with Crohn’s. Question everything and listen to yourself. What works for some people with Crohn’s may not work for you but you know best.

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No clue why I called my blog post ‘Tea for every occasion’. I like occasions and I like tea. I really like tea. All teas. And biscuits. Recently I have been quite ill. I think I got a stomach bug or something but it took it out of me. Obviously it was made worse with the Crohn’s and since Humera is an immuno-suppressant, it took me like a month to get over it and recover. But, one thing that I found helped was fennel tea, which I have a hilarious anecdote about. These are the kind of anecdotes that make me the life and soul of every occasion.

So we were having a big family dinner with Cousins and Aunties and jokes and jokes. While everyone was enjoying their wine I was on the teas and obviously everyone was curious why I was drinking tea with bits in it. So I explained “You see, I think I have a stomach bug at the moment and I find fennel tea really helps calm it down”. There were gasps of wonder because instead of using a fennel tea bag, I just used fennel seeds in hot water. Super tasty with something to chew on at the end. Plus we didn’t have any of the tea bags. No one round the table had ever considered such nonsense but they saw the sense of what I was saying and I would like to think I changed some lives that evening.

Moral of this awesome story and my heroic tea is that when you’re unwell, sometimes the simplest solutions are right in the cupboard behind the sugar. Which is not only an analogy for just looking past the sugar and eating healthily (is an analogy still awesome if you have to explain it) but in my case, physically true.

Anyway, I am keeping this post short. Like when you haven’t been to the gym in ages and need to take it slow. Its like that. I shall leave you with some boom bap.